NMD United, Inc. is a qualified 501(c)(3)

tax-exempt organization.

©2019 NMD United, Inc. All rights reserved.

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3310 W. Braker Lane *  Suite 300, #927  *  Austin, Texas 78758

 

Giving Tuesday 2018

Muscles don't matter, 
LIVING INDEPENDENTLY DOES!

All donations received by NMD United will benefit the Alex Landis Empowerment Fund (ALEF), which provides Independent Living grants to adults living neuromuscular disabilities.

We hope you'll join us this Giving Tuesday by supporting the efforts we give all year round!

Our Campaign Goal:
$10,000 OR 125 Independent Living Grants

DONATE NOW

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The Alex Landis Empowerment Fund (ALEF) currently covers:

 

  • Personal Care Attendant Advertisement Fees

  • Consumable Medical Supplies (CMS)

  • Accessible Vehicle Maintenance and Repair

  • Durable Medical Equipment

  • Assistive Technology

 

With your help, NMD United wants our ALEF grants to do more!

 

NMD United would like to be the first peer-led non-profit to give meaningful financial assistance for assistive technologies and other high-cost items. 

 

No other organization serving adults with neuromuscular disabilities

currently offers grants to cover these essential needs.

ALEF Grant Program 

 

Raising the bar!  

Last year our Giving Tuesday campaign was a huge success. We raised more than $4100 of our $5000 annual goal to completely fund the ALEF Grant Program for 2018, and 100% of those donations have gone directly to individual grants throughout the year. In total $10,000 is expected to be granted by the end of this year. 

 

This year's goal is $10,000!

ALEF helped dozens, but the need is even greater. 

 

Once again,  all monetary donations received by NMD United during our Giving Tuesday campaign will benefit the ALEF Grant Program. We guarantee 100% of your donation to NMD United will go directly to individuals living with neuromuscular disability.

 

We hope you'll join us this Giving Tuesday by supporting the efforts we give all year round!

 

2018 Highlights

A lot has changed in the ALEF Grant Program in the past year!

 

  • We have a new name. The Alex Landis Emergency Fund is now the Alex Landis  Empowerment Fund. The name reflects both a change in philosophy and a change in focus. We now have enough funds to be proactive rather than reactive.

  • Two new grants: 

    • $100 grants are now available to help cover costs of Assistive Technology devices 

    • $200 grants are available toward Durable Medical Equipment repairs or purchases 

  • Filling a new need. 

    • The Muscular Dystrophy Association announced that they will no longer be funding wheelchair or equipment repairs. NMD United is helping fill the gaps. This decision by MDA was the principal reasoning behind our decision to fund DME.

  • Grants quadrupled!

    • In 2017 we gave away a little over $2000 in micro grants. In 2018 the projection is nearly $10,000.

    • In 2019 we want to do more, and Giving Tuesday will help us determine how much more we can do.

 

Frequently Asked Questions

WHAT IS GIVING TUESDAY?

 

Giving Tuesday is a global day of giving fueled by the power of social media and collaboration. Celebrated on the Tuesday following Thanksgiving (in the U.S.) and the widely recognized shopping events Black Friday and Cyber Monday, Giving Tuesday kicks-off the charitable season when many focus on their holiday and end-of-year giving. Anyone, anywhere can get involved in Giving Tuesday and give back in a way that is meaningful to them. From fundraising to volunteering to pro bono service, Giving Tuesday is a great way to engage with your community and to become part of a larger worldwide movement that promotes generosity.

 

HOW DO I DONATE TO NMD UNITED'S GIVING TUESDAY CAMPAIGN?
 

You can donate to our Giving Tuesday campaign in three ways.

 

  1. You can donate via PayPal from this webpage by clicking any of the donate buttons, including this one:











     

  2. If you're following our social media campaign for Giving Tuesday, you can also donate through our Facebook fundraiser.
     

  3. If you do not feel comfortable making a donation online, you can mail a check or money order addressed to NMD United to: 11900 Metric Blvd., Suite J #205, Austin, TX 78758 (Be sure to write in the subject line that your donation is for "Giving Tuesday ALEF".) 

You can help us reach our $10,000 donation goal today!

Donate safely via PayPal!

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WHAT IS THE ALEF GRANT PROGRAM?
 

The Alex Landis Empowerment Fund (ALEF) Grant is an NMD United program offering grant money to individuals with neuromuscular disabilities. The ALEF Grant Program was founded in September 2015 after one of our co-founders, Alex Landis, unexpectedly passed away. We honor her legacy through this amazing program! You can read more about the ALEF Grant Program on our website.

 

WHAT GRANTS ARE AVAILABLE?

 

We are currently offering the following grants:

(1) Personal Attendant Care (PCA) Advertisement Fees up to $50 per person

(2) Out-of-Pocket Consumable Medical Supplies (CMS) up to $50 per person

(3) Accessible Vehicle Maintenance and Repair up to $100 per person

(4) Assistive Technology up to $100 per person

(5) Durable Medical Equipment (DME) up to $200 per person

Individuals are eligible to apply for and receive all grants in a calendar year.

 

WHO CAN RECEIVE GRANTS?
 

ALEF Grants are available to adults with neuromuscular disabilities, who are members of the Facebook support group Living with M.D. or present qualifying documentation. Grants are awarded on an as-needed basis as long as funds remain available. Individuals experiencing an immediate financial hardship, such that their health, safety and/or ability to independently live in the community is impacted, are strongly encouraged to apply.

 

WHY CHOOSE NMD UNITED?
 

NMD United meets an unmet need for a comprehensive peer support system. Today, more than 1950 members, all of whom are adults with neuromuscular disabilities, connect and create an organization based on a unique body of knowledge and experience about what it means to live with a neuromuscular disability. Created to capture and document what we as a community have learned while living with lifelong neuromuscular disabilities, NMD United devised a forum and projects for support and growth driven by people with NMD for people with NMD.

 

Individuals with disabilities often face financial difficulties, many subsisting on meager government benefits of approximately $733 USD per month and contending with barriers in employment. Costs of disability, such as certain medical supplies or maintaining accessible features within one’s personal environment, are often not covered by health insurance companies or other organizations. Thus, the Board of Directors established the Alex Landis Empowerment Fund (ALEF), a grant that helps adults living with neuromuscular disabilities (NMDs) by providing temporary relief in various areas of need. The ALEF Grant program aims to mitigate the out-of-pocket financial burden of disability.

 

WHO RUNS NMD UNITED?
 

NMD United, Inc. is a non-profit, peer-led organization composed of adults living with neuromuscular disabilities. We are governed by a working Board of Directors. NMD United runs on the generosity and passion of many volunteers.

 

HOW MUCH OF MY GIVING TUESDAY DONATION IS USED FOR ADMINISTRATIVE COSTS?
 

None of your Giving Tuesday donation will go toward administrative costs. 

 

HOW MUCH OF MY GIVING TUESDAY DONATION WILL GO DIRECTLY TO INDIVIDUALS IN NEED?
 

We guarantee 100% of your Giving Tuesday donation is given to individuals in need with neuromuscular disabilities! Our ALEF Committee is composed entirely of volunteers and, because of this, we experience $0 costs related to administering this program.

 

IS MY DONATION TAX DEDUCTIBLE?
 

Yes! All donations made to NMD United are tax deductible. We are a registered 501(c)(3) not-for-profit organization. For all donations over $500.00, NMD United will provide a formal tax receipt for your records. Please request a tax receipt for any donation under $500.00.

 

WHAT CAN I DO TO BE INVOLVED THIS GIVING TUESDAY?

 

  • Donate to our Giving Tuesday campaign!
    This year, we aim to raise $10,000! The funds will be used to provide direct monetary grants to individuals living with neuromuscular disability. Donate any amount to help us reach our goal.

     

  • Share this page to your social media network!
    We're able to do more for a larger number of individuals with neuromuscular disabilities because people like you spread the word about NMD United. Help us reach out to potential members and donors with a personalized message this Giving Tuesday! Use #GivingTuesday and tag @NMDUnited.

     

  • Volunteer your time with NMD United by joining one of our Committees!
    Giving Tuesday is so much more than one day in November. Pledge to do more in the following year. Support NMD United by joining one of our working Committees to continuously grow our programs!
     

  • Connect with us on social media!

 

WHAT IF I CAN'T DONATE MONEY?
 

We understand that not everyone will be able to contribute financially to our cause. There are still ways you can be involved that significantly help us! If you can't donate today but want to be of service, consider these options:

  1. Connect with us on social media!

    • 'Like' us on Facebook,

    • Follow our Twitter feed,

    • Join us on Instagram,

    • Share in our Pinterest ideas, and

    • Watch us on YouTube!

      Like and share our posts, including our Facebook Fundraiser. It's most effective if you write a short message to your followers about why you support NMD United and encourage them to like, share and donate, as well! Use #GivingTuesday and tag @NMDUnited.
       

  2. Share this webpage to your social media network!
    We're able to do more for a larger number of individuals with neuromuscular disabilities because people like you spread the word about NMD United. Help us reach out to potential members and donors with a personalized message this Giving Tuesday and a link direct to this webpage.

     

  3. Volunteer your time with NMD United by joining one of our Committees!
    Giving Tuesday is so much more than one day in November. Pledge to do more in the following year. Support NMD United by joining one of our working Committees to continuously grow our programs!
     

  4. Shop Amazon Smile!
    Shop with Amazon Smile, choose NMD United as your charity, and a portion of your payment will automatically be donated on your behalf without any additional cost to you!

 

WHAT IS A NEUROMUSCULAR DISABILITY?
 

Neuromuscular disability (NMD) is a very broad term that encompasses many disorders that impair the functioning of the muscles, either directly (being pathologies of the voluntary muscle) or indirectly (being pathologies of nerves or neuromuscular junctions). Voluntary muscles are the ones you can control, like in your arms and legs. Nerve cells, also called neurons, send the messages that control these muscles. If the neurons become unhealthy or die, communication between the nervous system and muscles breaks down. As a result, muscles weaken. Sometimes it also affects heart function and the ability to breathe.

Types of NMD include, but are not limited to:​​​

  • Becker Muscular Dystrophy

  • Charcot-Marie-Tooth (CMT)

  • Congenital Muscular Dystrophy

  • Distal Muscular Dystrophy

  • Duchenne Muscular Dystrophy (DMD)

  • Emery-Dreifuss Muscular Dystrophy

  • Facioscapulohumeral Muscular Dystrophy (FSHD)

  • Limb-Girdle Muscular Dystrophy (LGMD)

  • Myotonic Muscular Dystrophy

  • Spinal Muscular Atrophy (SMA)

NMD United strongly believes in the social model of disability, a model that embraces the present day and strives to change society’s perception and stigma regarding life with a disability. We know and understand that disability lies in an environment, social structure, and broader system that does not take into account the needs of accessibility. With accessibility and inclusion, disabled people are empowered to lead fulfilling, enriched lives with dignity.